This morning was hard……. really hard. And I can tell you through nearly eight years of navigating autism that my definition of “hard situations” has reached a level of extreme severity to use that word. First day back from break. I knew it would be difficult, it always is. But the events that unfolded IContinue reading “Tough transitions.”
Tag Archives: special needs family
Sleep deprivation is weighing on me…
Through all of the struggles, hardest parts, and stressful parts of autism. The sleep deprivation is what is weighing down on me heaviest these days. Most nights I see every hour on the clock, it’s been this way for almost ten years. Jackson has never been a great sleeper. He’s never napped, stayed asleep, hisContinue reading “Sleep deprivation is weighing on me…”
How to Dance in Ohio – What a Gift!
One week ago my mom and I stepped off a plane in New York City, we didn’t go because of the holiday window displays, for the Rockefeller Christmas tree, or to visit the Today Show. We went to see How To Dance In Ohio – The Musical. “Hey, I think I heard about that!” WasContinue reading “How to Dance in Ohio – What a Gift!”
21 Lessons From Autism in 2021
21 Lessons From Autism in 2021: 1. In their own time, in their own way. 2. People are curious and want to understand how to help, asking questions is just often uncomfortable. 3. It has brought some of the strongest, and most genuine women I know into my life. 4. Your behavior, as a parent,Continue reading “21 Lessons From Autism in 2021”
Lessons I’ve learned about marriage while raising a child with special needs.
“We’ve spent so much of our time and marriage teaching our son how to communicate somewhere along the way my husband and I forgot how to effectively do that with each other.”
The gift of time
My word for 2020 is time. This photo popped up in my memories this morning and I think back to when I said “I wish time would stand still”. Well, this year it did. We had moments where we were thankful for the slow down and appreciated the time together, time we wouldn’t have hadContinue reading “The gift of time”
We are building his community
Today I had a talk with Jackson’s pap, he told me about a gift that was waiting for Jackson at his house from a friend of his. They both love trains. One of my favorite parts of this journey is that when people who follow along see trains, they immediately think of Jackson. When IContinue reading “We are building his community”
My love for him, and my love for the holidays
My love for him and my love for the holidays had to be kept separate before this year. My sister and I could hardly sleep on Christmas Eve, we would cuddle up together in our matching pajamas but we were always too excited to sleep. We would wake before the sun, “sneak” down the stepsContinue reading “My love for him, and my love for the holidays”
I’m ready for forever
This morning I thought about forever, as we woke up before the sun, and hurried to get ready to go find trains. This is what we do. When you first find out you’re going to become a parent you think about raising a child, sending them off to college, and watching them get married andContinue reading “I’m ready for forever”
I’m thankful for grandparents
When I stop to count my blessings I never forget to say thank you seven times for the grand parents. Being a special needs grandparent is it’s own arena. They’ve learned how to meet Jackson where he is, fall in love with trains, find their way into his world. And we’ve been lucky enough toContinue reading “I’m thankful for grandparents”
Jackson's Journey, Jackson's Voice 