Four Tips for a Better IEP Meeting

.As a special needs parent I think we can all agree the panic we have felt before heading into these meetings. Even though I’ve sat through plenty for my own child, and many for clients as well these meetings always bring up nerves and jitters for parents. Here are some of my top tips forContinue reading “Four Tips for a Better IEP Meeting”

A love letter to my fellow autism mom.

The love language for a special needs parent to feel seen, accepted, and understood is as simple as a head nod, and a “me too” on a zoom call or a quick chat on the phone. Or maybe even in the grocery store where your child is having a hard time. If you’ve ever beenContinue reading “A love letter to my fellow autism mom.”

A letter to the struggling autism mom.

Mama, I see you, and I feel your heartache. I understand that every single day is a back and forth balance of finding the joy and grieving the life you thought your child would have. Your days are now filled with therapy appointments, IEP meetings, arguments with insurance and sleep deprivation. You are now leadingContinue reading “A letter to the struggling autism mom.”

The gift of time

My word for 2020 is time. This photo popped up in my memories this morning and I think back to when I said “I wish time would stand still”. Well, this year it did. We had moments where we were thankful for the slow down and appreciated the time together, time we wouldn’t have hadContinue reading “The gift of time”

We are building his community

Today I had a talk with Jackson’s pap, he told me about a gift that was waiting for Jackson at his house from a friend of his. They both love trains. One of my favorite parts of this journey is that when people who follow along see trains, they immediately think of Jackson. When IContinue reading “We are building his community”

My love for him, and my love for the holidays

My love for him and my love for the holidays had to be kept separate before this year. My sister and I could hardly sleep on Christmas Eve, we would cuddle up together in our matching pajamas but we were always too excited to sleep. We would wake before the sun, “sneak” down the stepsContinue reading “My love for him, and my love for the holidays”

I’m ready for forever

This morning I thought about forever, as we woke up before the sun, and hurried to get ready to go find trains. This is what we do. When you first find out you’re going to become a parent you think about raising a child, sending them off to college, and watching them get married andContinue reading “I’m ready for forever”

I’m thankful for grandparents

When I stop to count my blessings I never forget to say thank you seven times for the grand parents. Being a special needs grandparent is it’s own arena. They’ve learned how to meet Jackson where he is, fall in love with trains, find their way into his world. And we’ve been lucky enough toContinue reading “I’m thankful for grandparents”

Success in special needs parenting

Success in special needs parenting follows its own set of rules. It isn’t measured by little league trophies, or karate belts, classroom awards, or Boy Scout badges. Success is never giving up when you’re told all the “cant’s”. It’s that your child tried one new food this year. It’s never settling for less than whatContinue reading “Success in special needs parenting”