Lessons I’ve learned about marriage while raising a child with special needs.

“We’ve spent so much of our time and marriage teaching our son how to communicate somewhere along the way my husband and I forgot how to effectively do that with each other.”

Four Tips for a Better IEP Meeting

.As a special needs parent I think we can all agree the panic we have felt before heading into these meetings. Even though I’ve sat through plenty for my own child, and many for clients as well these meetings always bring up nerves and jitters for parents. Here are some of my top tips forContinue reading “Four Tips for a Better IEP Meeting”

A love letter to my fellow autism mom.

The love language for a special needs parent to feel seen, accepted, and understood is as simple as a head nod, and a “me too” on a zoom call or a quick chat on the phone. Or maybe even in the grocery store where your child is having a hard time. If you’ve ever beenContinue reading “A love letter to my fellow autism mom.”

A letter to the struggling autism mom.

Mama, I see you, and I feel your heartache. I understand that every single day is a back and forth balance of finding the joy and grieving the life you thought your child would have. Your days are now filled with therapy appointments, IEP meetings, arguments with insurance and sleep deprivation. You are now leadingContinue reading “A letter to the struggling autism mom.”

This season is a season of hard

As I lay here with silent tears streaming down my face, Jackson is vocal stimming (manic laughter), with a body that just can’t find a calm state, evenings have been hard lately, he just can’t wind himself down anymore. Even as we lay here and he’s drifting off to sleep he’s moaning to keep theContinue reading “This season is a season of hard”

The gift of time

My word for 2020 is time. This photo popped up in my memories this morning and I think back to when I said “I wish time would stand still”. Well, this year it did. We had moments where we were thankful for the slow down and appreciated the time together, time we wouldn’t have hadContinue reading “The gift of time”

Perspective is a funny thing

Perspective is a funny thing. I always thought parenting would be about never missing a sports game, eating big family meals, time outs for sibling scuffles, and planning memorable family vacations. And although for you it may be about those things, special needs parenting has changed what being a parent means to me. It meansContinue reading “Perspective is a funny thing”

We are building his community

Today I had a talk with Jackson’s pap, he told me about a gift that was waiting for Jackson at his house from a friend of his. They both love trains. One of my favorite parts of this journey is that when people who follow along see trains, they immediately think of Jackson. When IContinue reading “We are building his community”

My love for him, and my love for the holidays

My love for him and my love for the holidays had to be kept separate before this year. My sister and I could hardly sleep on Christmas Eve, we would cuddle up together in our matching pajamas but we were always too excited to sleep. We would wake before the sun, “sneak” down the stepsContinue reading “My love for him, and my love for the holidays”