This weekend as we got out of the car in a busy grocery store parking lot, and I immediately reminded my son who has autism to “hold my hand we are in a parking lot”. I thought to myself…. Do people know? When they see my seven year old son, who is nearly taller thanContinue reading “Do They Know?”
Tag Archives: autism mom
Come walk a day in our shoes.
Spend the time walking beside us and understand how hard he works to access our world each and every day. I hope you see that he brushes my shoulder each morning to wake me before the sun. That I gently dress him, brush his hair, his teeth and am working on teaching him to doContinue reading “Come walk a day in our shoes.”
21 Lessons From Autism in 2021
21 Lessons From Autism in 2021: 1. In their own time, in their own way. 2. People are curious and want to understand how to help, asking questions is just often uncomfortable. 3. It has brought some of the strongest, and most genuine women I know into my life. 4. Your behavior, as a parent,Continue reading “21 Lessons From Autism in 2021”
Four Tips for a Better IEP Meeting
.As a special needs parent I think we can all agree the panic we have felt before heading into these meetings. Even though I’ve sat through plenty for my own child, and many for clients as well these meetings always bring up nerves and jitters for parents. Here are some of my top tips forContinue reading “Four Tips for a Better IEP Meeting”
A love letter to my fellow autism mom.
The love language for a special needs parent to feel seen, accepted, and understood is as simple as a head nod, and a “me too” on a zoom call or a quick chat on the phone. Or maybe even in the grocery store where your child is having a hard time. If you’ve ever beenContinue reading “A love letter to my fellow autism mom.”
A letter to the struggling autism mom.
Mama, I see you, and I feel your heartache. I understand that every single day is a back and forth balance of finding the joy and grieving the life you thought your child would have. Your days are now filled with therapy appointments, IEP meetings, arguments with insurance and sleep deprivation. You are now leadingContinue reading “A letter to the struggling autism mom.”
The gift of time
My word for 2020 is time. This photo popped up in my memories this morning and I think back to when I said “I wish time would stand still”. Well, this year it did. We had moments where we were thankful for the slow down and appreciated the time together, time we wouldn’t have hadContinue reading “The gift of time”
We are building his community
Today I had a talk with Jackson’s pap, he told me about a gift that was waiting for Jackson at his house from a friend of his. They both love trains. One of my favorite parts of this journey is that when people who follow along see trains, they immediately think of Jackson. When IContinue reading “We are building his community”
I’m ready for forever
This morning I thought about forever, as we woke up before the sun, and hurried to get ready to go find trains. This is what we do. When you first find out you’re going to become a parent you think about raising a child, sending them off to college, and watching them get married andContinue reading “I’m ready for forever”
I’m thankful for grandparents
When I stop to count my blessings I never forget to say thank you seven times for the grand parents. Being a special needs grandparent is it’s own arena. They’ve learned how to meet Jackson where he is, fall in love with trains, find their way into his world. And we’ve been lucky enough toContinue reading “I’m thankful for grandparents”