This weekend as we got out of the car in a busy grocery store parking lot, and I immediately reminded my son who has autism to “hold my hand we are in a parking lot”. I thought to myself…. Do people know? When they see my seven year old son, who is nearly taller thanContinue reading “Do They Know?”
Tag Archives: autism
Come walk a day in our shoes.
Spend the time walking beside us and understand how hard he works to access our world each and every day. I hope you see that he brushes my shoulder each morning to wake me before the sun. That I gently dress him, brush his hair, his teeth and am working on teaching him to doContinue reading “Come walk a day in our shoes.”
21 Lessons From Autism in 2021
21 Lessons From Autism in 2021: 1. In their own time, in their own way. 2. People are curious and want to understand how to help, asking questions is just often uncomfortable. 3. It has brought some of the strongest, and most genuine women I know into my life. 4. Your behavior, as a parent,Continue reading “21 Lessons From Autism in 2021”
Lessons I’ve learned about marriage while raising a child with special needs.
“We’ve spent so much of our time and marriage teaching our son how to communicate somewhere along the way my husband and I forgot how to effectively do that with each other.”
A love letter to my fellow autism mom.
The love language for a special needs parent to feel seen, accepted, and understood is as simple as a head nod, and a “me too” on a zoom call or a quick chat on the phone. Or maybe even in the grocery store where your child is having a hard time. If you’ve ever beenContinue reading “A love letter to my fellow autism mom.”
A letter to the struggling autism mom.
Mama, I see you, and I feel your heartache. I understand that every single day is a back and forth balance of finding the joy and grieving the life you thought your child would have. Your days are now filled with therapy appointments, IEP meetings, arguments with insurance and sleep deprivation. You are now leadingContinue reading “A letter to the struggling autism mom.”
My love for him, and my love for the holidays
My love for him and my love for the holidays had to be kept separate before this year. My sister and I could hardly sleep on Christmas Eve, we would cuddle up together in our matching pajamas but we were always too excited to sleep. We would wake before the sun, “sneak” down the stepsContinue reading “My love for him, and my love for the holidays”
Mama grief runs deep…
It creeps in late at night, when she can’t sleep – because she’s worried about every little detail from the day.
I’m ready for forever
This morning I thought about forever, as we woke up before the sun, and hurried to get ready to go find trains. This is what we do. When you first find out you’re going to become a parent you think about raising a child, sending them off to college, and watching them get married andContinue reading “I’m ready for forever”
I’m thankful for grandparents
When I stop to count my blessings I never forget to say thank you seven times for the grand parents. Being a special needs grandparent is it’s own arena. They’ve learned how to meet Jackson where he is, fall in love with trains, find their way into his world. And we’ve been lucky enough toContinue reading “I’m thankful for grandparents”
Jackson's Journey, Jackson's Voice 