autism – Page 2 – Jackson's Journey, Jackson's Voice

Mama grief runs deep…

It creeps in late at night, when she can’t sleep – because she’s worried about every little detail from the day.

This morning I thought about forever, as we woke up before the sun, and hurried to get ready to go find trains. This is what we do. When you first find out you’re going to become a parent you think about raising a child, sending them off to college, and watching them get married andContinue reading “I’m ready for forever”

I’m thankful for grandparents

When I stop to count my blessings I never forget to say thank you seven times for the grand parents. Being a special needs grandparent is it’s own arena. They’ve learned how to meet Jackson where he is, fall in love with trains, find their way into his world. And we’ve been lucky enough toContinue reading “I’m thankful for grandparents”

Success in special needs parenting

Success in special needs parenting follows its own set of rules. It isn’t measured by little league trophies, or karate belts, classroom awards, or Boy Scout badges. Success is never giving up when you’re told all the “cant’s”. It’s that your child tried one new food this year. It’s never settling for less than whatContinue reading “Success in special needs parenting”

The evolution of communication

When I think back on this journey of parenting a child on the autism spectrum certain bullet point topics stand out to me that will define your journey as a parent, your child’s journey as a person with autism, and the journey for those who can selflessly join in for the ride. What stands outContinue reading “The evolution of communication”

Mama, you are not alone.

Mama, you are not alone. I have lost sleep too, and I don’t have all the answers. I also don’t have a crystal ball with what this back to school season will look like. My special needs kiddo also can’t wear a mask, and he can’t communicate when he’s feeling sick. He still puts thingsContinue reading “Mama, you are not alone.”

A letter to my husband

To my husband who chose to stay: That sounds so ridiculous to say out loud, some people are currently scratching their heads because why would I say that? I say it because it’s true….. Thank you for loving me when the diagnosis of autism consumed me, and changed who I was. I was no longerContinue reading “A letter to my husband”

Mother’s Day for a special needs mama

Mother’s Day for a special needs mom does not look like everyone else’s day…..I am spending my Mother’s Day redirecting behaviors that are furiously present this week. I’m not saying this as negative, I’m saying it because it’s true, and I’m recognizing the hard. I try to share the good more than the bad, butContinue reading “Mother’s Day for a special needs mama”