This season won’t last forever mama. One day parts of this journey will get easier and you’ll look back and wonder how you did it, question how you made it through. I don’t mean special needs parenting will get easier, but eventually you find a groove, or maybe you find help along the way. YouContinue reading “Hang on tight…..”
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How to Dance in Ohio – What a Gift!
One week ago my mom and I stepped off a plane in New York City, we didn’t go because of the holiday window displays, for the Rockefeller Christmas tree, or to visit the Today Show. We went to see How To Dance In Ohio – The Musical. “Hey, I think I heard about that!” WasContinue reading “How to Dance in Ohio – What a Gift!”
This season is a season of hard
As I lay here with silent tears streaming down my face, Jackson is vocal stimming (manic laughter), with a body that just can’t find a calm state, evenings have been hard lately, he just can’t wind himself down anymore. Even as we lay here and he’s drifting off to sleep he’s moaning to keep theContinue reading “This season is a season of hard”
I lay awake at night….
I lay awake at night and ask a lot of questions….. Some I know the answers to in the glow of the afternoon sun while we are laughing and hunting for trains but I can’t seem to find the answers for once the house is quiet and I’m left awaiting the early morning wake up.Continue reading “I lay awake at night….”
The gift of time
My word for 2020 is time. This photo popped up in my memories this morning and I think back to when I said “I wish time would stand still”. Well, this year it did. We had moments where we were thankful for the slow down and appreciated the time together, time we wouldn’t have hadContinue reading “The gift of time”
Perspective is a funny thing
Perspective is a funny thing. I always thought parenting would be about never missing a sports game, eating big family meals, time outs for sibling scuffles, and planning memorable family vacations. And although for you it may be about those things, special needs parenting has changed what being a parent means to me. It meansContinue reading “Perspective is a funny thing”
We are building his community
Today I had a talk with Jackson’s pap, he told me about a gift that was waiting for Jackson at his house from a friend of his. They both love trains. One of my favorite parts of this journey is that when people who follow along see trains, they immediately think of Jackson. When IContinue reading “We are building his community”
My love for him, and my love for the holidays
My love for him and my love for the holidays had to be kept separate before this year. My sister and I could hardly sleep on Christmas Eve, we would cuddle up together in our matching pajamas but we were always too excited to sleep. We would wake before the sun, “sneak” down the stepsContinue reading “My love for him, and my love for the holidays”
Public Schools Accused of Defrauding Special Education Students During Pandemic Nationwide
Our lives are often broken up by dates that mark significant events that change us. Our wedding dates, the birthdays of our children, the death of a family member we loved and cherished.. And for parents in 2020, there are various dates throughout the second week of March that will stay with them forever. ForContinue reading “Public Schools Accused of Defrauding Special Education Students During Pandemic Nationwide”
Mama grief runs deep…
It creeps in late at night, when she can’t sleep – because she’s worried about every little detail from the day.
Jackson's Journey, Jackson's Voice 