This morning was hard……. really hard. And I can tell you through nearly eight years of navigating autism that my definition of “hard situations” has reached a level of extreme severity to use that word. First day back from break. I knew it would be difficult, it always is. But the events that unfolded IContinue reading “Tough transitions.”
Tag Archives: autism
Sleep deprivation is weighing on me…
Through all of the struggles, hardest parts, and stressful parts of autism. The sleep deprivation is what is weighing down on me heaviest these days. Most nights I see every hour on the clock, it’s been this way for almost ten years. Jackson has never been a great sleeper. He’s never napped, stayed asleep, hisContinue reading “Sleep deprivation is weighing on me…”
How to Dance in Ohio – What a Gift!
One week ago my mom and I stepped off a plane in New York City, we didn’t go because of the holiday window displays, for the Rockefeller Christmas tree, or to visit the Today Show. We went to see How To Dance In Ohio – The Musical. “Hey, I think I heard about that!” WasContinue reading “How to Dance in Ohio – What a Gift!”
Do They Know?
This weekend as we got out of the car in a busy grocery store parking lot, and I immediately reminded my son who has autism to “hold my hand we are in a parking lot”. I thought to myself…. Do people know? When they see my seven year old son, who is nearly taller thanContinue reading “Do They Know?”
Come walk a day in our shoes.
Spend the time walking beside us and understand how hard he works to access our world each and every day. I hope you see that he brushes my shoulder each morning to wake me before the sun. That I gently dress him, brush his hair, his teeth and am working on teaching him to doContinue reading “Come walk a day in our shoes.”
21 Lessons From Autism in 2021
21 Lessons From Autism in 2021: 1. In their own time, in their own way. 2. People are curious and want to understand how to help, asking questions is just often uncomfortable. 3. It has brought some of the strongest, and most genuine women I know into my life. 4. Your behavior, as a parent,Continue reading “21 Lessons From Autism in 2021”
Lessons I’ve learned about marriage while raising a child with special needs.
“We’ve spent so much of our time and marriage teaching our son how to communicate somewhere along the way my husband and I forgot how to effectively do that with each other.”
A love letter to my fellow autism mom.
The love language for a special needs parent to feel seen, accepted, and understood is as simple as a head nod, and a “me too” on a zoom call or a quick chat on the phone. Or maybe even in the grocery store where your child is having a hard time. If you’ve ever beenContinue reading “A love letter to my fellow autism mom.”
A letter to the struggling autism mom.
Mama, I see you, and I feel your heartache. I understand that every single day is a back and forth balance of finding the joy and grieving the life you thought your child would have. Your days are now filled with therapy appointments, IEP meetings, arguments with insurance and sleep deprivation. You are now leadingContinue reading “A letter to the struggling autism mom.”
My love for him, and my love for the holidays
My love for him and my love for the holidays had to be kept separate before this year. My sister and I could hardly sleep on Christmas Eve, we would cuddle up together in our matching pajamas but we were always too excited to sleep. We would wake before the sun, “sneak” down the stepsContinue reading “My love for him, and my love for the holidays”
Jackson's Journey, Jackson's Voice 